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Category: Erdheim-Chester Disease

Erdheim-Chester Disease. Like winning the lottery?

Gary Stark December 12, 2020

ECD is a very rare disease, and one has a far greater chance of winning the lottery, or Lotto, or whatever. The number of documented cases of ECD in the whole world number in the hundreds. 

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Erdheim-Chester Disease Medical and Health
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  • Following my Floppy Eyelid surgery, swelling persisted over several months. With no reduction apparent, I sought a second opinion.
    about 1 year ago
  • In order to treat my Floppy Eyelid Syndrome my doctor tried a creative approach: I would wear swimming goggles while sleeping.
    about 1 year ago
  • Typical presentation for ECD is in our long bones. The shins, for instance. Less common is in the orbit: around the eyes. That's me.
    about 1 year ago
  • In order to treat my Floppy Eyelid Syndrome my doctor tried a creative approach: I would wear swimming goggles while sleeping.
    about 1 year ago
  • My ECD started in around September 2019, when I started to notice an excess of mucous production around and from my right eye.
    about 1 year ago

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