The swelling persisted over several months and through several visits with my eye surgeon, and with no reduction apparent, I then sought to obtain a second opinion.
Read moreFloppy Eyelid Syndrome – sleeping while wearing swimming goggles
The eye surgeon had already diagnosed me as having Floppy Eyelid Syndrome (FES). He tried a somewhat creative and non-invasive approach to try to deal with this: I was to wear swimming goggles while sleeping
Read moreMy Erdheim-Chester Disease – Mucous from the right eye
My ECD started in around September 2019, when I started to notice an excess of mucous production around and from my right eye.
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Erdheim-Chester Disease – Typical presentation
ECD is not a cancer. It’s a cancer imitator. It manifests itself with the over-production of cells, which is what a cancer does, but I am told that it does not spread, which is what a cancer will do.
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