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Tag: ECD

Floppy Eyelid Syndrome – Post Procedure

Gary Stark December 20, 2020

The swelling persisted over several months and through several visits with my eye surgeon, and with no reduction apparent, I then sought to obtain a second opinion.

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Erdheim-Chester Disease Medical and Health

Floppy Eyelid Syndrome – sleeping while wearing swimming goggles

Gary Stark December 14, 2020December 20, 2020

The eye surgeon had already diagnosed me as having Floppy Eyelid Syndrome (FES). He tried a somewhat creative and non-invasive approach to try to deal with this: I was to wear swimming goggles while sleeping

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Erdheim-Chester Disease Medical and Health Sleep Apnea

My Erdheim-Chester Disease – Mucous from the right eye

Gary Stark December 12, 2020

My ECD started in around September 2019, when I started to notice an excess of mucous production around and from my right eye.

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Erdheim-Chester Disease Medical and Health
May 2020, post correctional procedure.

Erdheim-Chester Disease – Typical presentation

Gary Stark December 12, 2020December 14, 2020

ECD is not a cancer. It’s a cancer imitator. It manifests itself with the over-production of cells, which is what a cancer does, but I am told that it does not spread, which is what a cancer will do.

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Erdheim-Chester Disease Medical and Health
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  • Following my Floppy Eyelid surgery, swelling persisted over several months. With no reduction apparent, I sought a second opinion.
    about 2 years ago
  • In order to treat my Floppy Eyelid Syndrome my doctor tried a creative approach: I would wear swimming goggles while sleeping.
    about 2 years ago
  • Typical presentation for ECD is in our long bones. The shins, for instance. Less common is in the orbit: around the eyes. That's me.
    about 2 years ago
  • In order to treat my Floppy Eyelid Syndrome my doctor tried a creative approach: I would wear swimming goggles while sleeping.
    about 2 years ago
  • My ECD started in around September 2019, when I started to notice an excess of mucous production around and from my right eye.
    about 2 years ago

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